Sr no 207
“A little joy goes a long way.”
Sai (9) has Cerebral Palsy; he is studying in the 3rd standard at ADAPT school, Bandra. He lives at Mahim with his parents.
Sai has a speech impairment, but, the people who live with him, and his teachers, can understand every word he speaks. His legs are too weak to carry him ably, so he crawls to get around. He receives regular physiotherapy at ADAPT school to strengthen his limbs.
As Sai is growing older and a little bigger, a little heavier, it is becoming difficult to carry him around. His parents reached out for assistance in buying a wheelchair for him. His mother is a graduate and was once a working woman, however, because Sai needed full-time care, she left her job and is a homemaker and full-time caregiver. She is amongst the many strongest women I’ve met.
Sai is just like us. If you snatch the TV remote from his hands, he gets very upset. And when he is happy, he crawls all over the house in excitement! A little joy goes a long way. His favorite sweet is KINDER JOY Chocolate Candy.
Sai is just like us. He has a dream. He wants to work in an office with a laptop. However, for Sai’s parents, their ambition, dream and goal for Sai is – TO MAKE HIM WALK ON HIS OWN LEGS!, without any instrument or human support.
At the moment, his siblings are big supports too, they pitch in to take care of him and to play with him. His biggest asset is, his paternal grandmother.
I asked Sai’s mother about some of the challenges parents and family of a differently abled child face… so that we ‘abled’ people may learn from those not as fortunate as us…… she said ….. “…. we have so much support from my husband’s parents, to bring up this child, that I have realised emotional and spiritual strength from our family and friends, and our own emotional strength, is far more important than our financial strength.
Thank you for helping us buy this wheelchair, however, I will make it redundant one day, because, it is my ambition, our family’s collective ambition, that I will make Sai walk on his own two feet someday, one day! For sure!”
Yes, we can manage with a little less money but we all need a lot of love. Lots.
I know of a relatve who needs such care, it made me realise the importance of family and friends who you feel you will need someday to pitch in, with just their emotional support. When you feel pulled down, beieve me – even a phone call to hear your friend or relative makes you feel you will see this through.
It also makes you realise there are only a handful of people you can really count on, call randomly just to hear their voice, and that makes you stronger emotionally and more independent. It also makes you more astute in choosing who you choose to spend most of your time and emotions on.
Such support from family and a few friends is also a kind of ‘immense-wealth’ we need to nurture, and we could achieve that if we will be there for some others before expecting them to be there for us. It’s often about giving before receiving.
Thank you Picto Writ and NS for buying this wheel chair for Sai. His parents contributed nearly one third towards it. Thank you Health Care Equipments, Vile Parle, for giving them a good discount and service on their purchase of this wheelchair.
And we bought him Kinder Joy too,because a little joy goes a very long way.
#BicycleAngels 🚴 😇:
Beneficiaries of help: https://www.facebook.com/media/set/?set=oa.357090647765413&type=1